MOLGENIS - the flexible research data platform
MOLGENIS provides virtual data infrastructure to large (inter)national health research projects and groups. All MOLGENIS tools are free and open source, implement standards and FAIR principles, and have model-based configuration to quickly adapt to new research.
Tools
MOLGENIS provides FAIR data infrastructure through flexible tools:
Research communities
MOLGENIS accelerates research with flexible IT tools, support and hosting:
biobanking
"Metadata on all types of human biological samples, such as blood, tissue, cells or dna, as well as other biomolecular resources that can be used in health research."
birth cohorts
"Integrating pregnancy and childhood cohorts to jointly study early life to improve health across the full lifecycle."
cancer
"Addressing major challenges in cancer research via national and eu data federations"
human exposome
"Research into the unhealthy environments that contribute to three quarters of the global burden of disease."
genetics
"Co-analyzing genetic data from thousands of patients and citizens, including phenotypes, pedigrees, exome/genome sequencing, and multiomics data."
multi-center cohort studies
"Population cohort studies provide longitudinal data concerning mental and physical health, sociodemographic, lifestyle, economic, and environmental factors."
rare disease
"Creating (inter)national patient registries to enable breakthrough research into these diseases"
real-world evidence
"Clinical evidence about benefits or risks of medince, derived from the analysis of real-world data (rwd)"
Partnerships
MOLGENIS is created and sustained through multi-center partnerships:
ATHLETE
Advancing Tools for Human Early Lifecourse Exposome Research and Translation
BBMRI-ERIC
The European Research Infrastructure for biobanking and biomolecular resources
CINECA
Common Infrastructure for National Cohorts in Europe, Canada, and Africa
CRANIO-ERN
The European Reference Network for rare and/or complex craniofacial anomalies and ear, nose and throat (ENT) disorders
CardioResource
CardioResource
ConcePTION
Building an ecosystem for better monitoring and communicating of medication safety in pregnancy and breastfeeding - validated and regulatory endorsed workflows for fast, optimised evidence generation
EHEN
The European Human Exposome Network
EOSC4Cancer
European Open Science Cloud for Cancer
ERDERA
The European Rare Diseases Research Alliance
EUCAN-connect
Federated FAIR platform enabling large-scale analysis of high-value cohort data connecting Europe and Canada in personalized health
FAIR Genomes
A national guideline to promote optimal (re)use of NGS data in research and healthcare
FORCE
InFrastructure fOr Rare Cancers in the NEtherlands
GDI
The European Genomic Data Infrastructure (GDI) project
GEN2PHEN
Unify human and model organism genetic variation databases towards increasingly holistic views into Genotype-To-Phenotype (G2P) data
GENTURIS-ERN
The European Reference Network (ERN) for all patients with one of the rare genetic tumour risk syndromes (genturis)
GoNL
Genome of the Netherlands
Health-RI
The Dutch national integrated health data infrastructure
IHEN
The International Human Exposome Network
INTEGRATE-LMedC
Concept development for a research infrastructure to manage, integrate and sustain large medical cohort studies
INTERCEPT IHI
Pioneering A Future Without Crohn's Disease
ITHACA-ERN
The European Reference Network for Rare Malformation Syndromes, Intellectual and Other Neurodevelopmental Disorders
LifeCycle
Early-life stressors and LifeCycle health
Lifelines
The large, multi-generational, prospective cohort study that includes over 167,000 participants (10%) from the northern population of the Netherlands.
LongITools
Dynamic longitudinal exposome trajectories in cardiovascular and metabolic non-communicable diseases
MINERVA
Strengthening Use of Real-World Data in Medicines Development - Metadata for Data Discoverability and Study Replicability (MINERVA)
NESTOR
NEtherlandS genetic TumOr Risk Registry
RD-connect
The Dutch national integrated health data infrastructure
ReCONNET-ERN
The European Reference Network on Rare and Complex Connective Tissue and Musculoskeletal Diseases
SKIN-ERN
The European Reference Network for rare, complex and undiagnosed skin diseases
STAGE
An Integrated Life-Course Approach for Person-Centred Solutions and Care for Aging with Multi-morbidity in the European Regions - STAGE; Stay Healthy Through Aging
Solve-RD
Solving the unsolved rare diseases
UMCG-CBCH
UMCG Cohort and Biobank Coordination Hub
UNCAN-connect
UNCAN-CONNECT Decentralized Collaborative Network for Advancing Cancer Research and Innovation
VKGL
Society of Genome diagnostics Laboratories / Vereniging Klinisch Genetische Laboratoriumdiagnostiek
Get involved
- Contact: support@molgenis.org
- Github: https://github.com/molgenis
- LinkedIn: https://www.linkedin.com/company/molgenis